Disability and Health Journal
Volume 3, Issue 1 , Pages 51-55 , January 2010

Reflections on the debate on disability and aid in dying

  • Gloria L. Krahn, Ph.D., M.P.H.

      Affiliations

    • Corresponding Author InformationCorresponding author: 1600 Clifton Road NE, MS E88, Atlanta, GA 30333. Fax: (404) 498-6743.

References 

  1. Pew Research Center for the People and the Press. More Americans discussing and planning end of life treatment: strong public support for right to die (Jan 5, 2006). Available at: http://people-press.org/reports/display.php3?ReportID=266.
  2. Gallup poll. Public divided over moral acceptability of doctor-assisted suicide (May 31, 2007). Available at: http://www.gallup.com/poll/27727/public-divided-over-moral-acceptability-doctorassisted-suicide.aspx.
  3. Golden M. Personal communication, comments from a disability advocacy perspective on APHA's Death with Dignity Policy Proposal: summary of Executive Committee Actions, Disability Rights Education and Defense Fund (October 24, 2007).
  4. Drum CE, White G, Taitano G, et al. The Oregon Death with Dignity Act: results of a literature review and naturalistic inquiry. Disabil Health J. 2010;3(1):3–15
  5. Teno JM, Clarridge BR, Casey V, et al. Family perspectives on end-of-life care at the last place of care. JAMA. 2004;291(1):88–93
  6. Oregon Department of Human Services. Death with Dignity Act Annual Reports, 1999-2008. Available at: http://www.oregon.gov/DHS/ph/pas/ar-index.shtml.
  7. American Public Health Association. Policy D.1 Patients' Rights to Self Determination at the End of Life (2008). Available at: http://www.apha.org/NR/rdonlyres/2B1CC75D-FFA6-4FCB-B630-929403F16946/0/D1June08Resubmission.pdf.
  8. Steinhauser KE, Christakis NA, Clipp EC, et al. Factors considered important at the end of life by patients, family, physicians, and other care providers. JAMA. 2000;284(19):2476–2482
  9. Albrecht GL, Devlieger PJ. The disability paradox: high quality of life against all odds. Soc Sci Med. 1999;48(8):977–988
  10. Coleman D, Gill C. Testimony before the Constitution Subcommittee of the Judiciary Committee of the U.S. House of Representatives. April 29, 1996;Available at: http://www.notdeadyet.org/docs/house1.html
  11. Battin MP, van der Heide A, Ganzini L, et al. Legal physician-assisted dying in Oregon and the Netherlands: evidence concerning the impact on patients in “vulnerable” groups. J Med Ethics. 2007;33:591–597
  12. Fromme EK, Tilden VP, Drach LL, et al. Increased family reports of pain or distress in dying Oregonians: 1996-2002. J Palliat Med. 2004;7(3):431–442
  13. Cassel CK, Ludden JM, Moon GM. Perceptions of barriers to high-quality palliative care in hospitals. Health Aff. 2000;19(5):166–172
  14. Quill TE, Cassle CK. Professional organizations' position statements on physician-assisted suicide: a case for studied neutrality. Ann Intern Med. 2003;138(3):208–211
  15. Kass NE. An ethics framework for public health. Am J Public Health. 2001;91(11):1776–1782

 Financial disclosure: The author has no conflicts of interest to declare. The contents of this article were developed while the author was employed by Oregon Health & Science University. She is now employed by the Centers for Disease Control and Prevention. However, the contents do not represent the policy of OHSU or of CDC, and the reader should not assume endorsement by the Federal Government.

PII: S1936-6574(09)00186-1

doi: 10.1016/j.dhjo.2009.10.002

Disability and Health Journal
Volume 3, Issue 1 , Pages 51-55 , January 2010