Research PaperValidity of the Participation and Environment Measure for Children and Youth (PEM-CY) for Health Impact Assessment (HIA) in sustainable development projects
Section snippets
Sample
Using a cross-sectional design, participants were 89 caregivers of children and youth with disabilities residing in non-urban communities. Sample 1 (obtained May–October 2010) included 66 families who participated in the PEM-CY validation study via the provision of recruitment materials (e.g., flyers, electronic mailing lists, website posting, presentations, direct solicitation, and newsletters) to staff from community-based agencies and groups by three collaborating institutions in their
Child and family characteristics
Table 1, Table 2 summarize the distribution of selected demographic characteristics for Samples 1, 2, and the combined study sample. A total of 89 caregivers of children (M = 11.91 years, SD = 3.36) with a broad range of diagnoses identified as residing in smaller towns or rural communities within the United States (60.6%) and Canada (39.4%). Most respondents were mothers (91.0%), Caucasian (75.0%), and had at least 2 children living at home. Roughly half of the participants reported annual
Discussion
Children's participation in daily life activities as a major influence on health and well-being is well established.20, 21 For children with disabling conditions, there is evidence that physical and social features of environments positively and negatively impact activity participation.19, 29, 30, 35, 36, 37 Depending in part on the type and severity of the child's health condition, environmental modifications may be a feasible option for promoting participation.45 Sustainable development teams
Conclusion
HIA is a process for appraising environmental impact on human health and often includes vulnerable populations at greater risk for health inequities in the assessment process; such as community members with disabilities.12 This study provides preliminary support of the validity and utility of the PEM-CY for HIA in sustainable development projects affecting children with disabilities in non-urban communities. When used in this particular decision-making context, the PEM-CY may enable
Acknowledgments
We thank Renee Lee, Jenna Moriarty, and Anna Cliff for oversight of participant recruitment for Sample 2 data collection, Sarah Pickle for assistance with data management and entry, and Gale Whiteneck for permission to use the Craig Hospital Inventory of Environmental Factors for Children–Parent Version.
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This research was supported by funds from the U.S. Department of Education, National Institute on Disability and Rehabilitation Research (Grant # H133G070140) and the Department of Occupational Therapy, Colorado State University. We declare no additional conflicts of interest.